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Medicine has triumphed in modern times, transforming birth, injury, and infectious disease from harrowing to manageable. But in the inevitable condition of aging and death, the goals of medicine seem too frequently to run counter to the interest of the human spirit. Nursing homes, preoccupied with safety, pin patients into railed beds and wheelchairs. Hospitals isolate the dying, checking for vital signs long after the goals of cure have become moot....
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"After an accident leaves his wife Elle brain dead, Matt Beaulieu, resolving to take her off life support, changes his mind when the doctors discover that she is pregnant - a decision that results in a controversial legal battle with Elle's family." -- from publisher.
3) LGBTQ-Inclusive Hospice and Palliative Care: A Practical Guide to Transforming Professional Practice
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This is the only handbook for hospice and palliative care professionals looking to enhance their care delivery or their programs with LGBTQ-inclusive care. Anchored in the evidence, extensively referenced, and written in clear, easy-to-understand language, LGBTQ-Inclusive Hospice and Palliative Care provides clear, actionable strategies for hospice and palliative physicians, nurses, social workers, counselors, and chaplains.
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Sharing stories of real people they have encountered as professional hospice caregivers, the authors explore both the practical and philosophical aspects of the hospice movement. Straightforward and nontechnical in approach, Hospice, A Labor of Love offers help and inspiration to hospice volunteers, pastoral counselors, and the families of those who are receiving hospice care.
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All of us are entitled to the rewards of a peaceful, pain-free death. This book honors that with true stories about hospice patients and inspiring insights from the author. Becoming Dead Right guides us through the general and "how to" information maze that prepares us for dealing with death. Improving and expanding hospice services will require systemic changes in healthcare institutions, outreach to diverse populations, and funding. With the inclusion...
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A series of recent landmark cases have highlighted the issues surrounding assisted suicide and may be shifting public opinion in the direction of greater freedom. These essays cover every aspect of the topic from the legal and religious issues to the deeply personal experiences of patients and careers. They present a reasoned libertarian argument for people with terminal conditions, or poor quality of life due to illness or treatment, to be allowed...
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Framed by the author's personal odyssey as a caregiver and richly informed by the inspiring and poignant tales of others, Caregiving explores medical and financial problems, all aspects of spirituality, and such issues as depression, stress, housing, home care, and end-of-life concerns. A rare blend of powerful storytelling and practical information, Caregiving is a revelation.
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This book details Anne Allbright Smith's eleven days of discomfort and pain as she voluntarily stopping eating and drinking (VSED) to bring about her own death. This was despite compassionate hospice care throughout.
There is overwhelming public support for Medical Aid in Dying (MAID). Yet only ten states and the District of Columbia have MAID statutes on their books. Why won't more legislators support the will of their constituents?
By contrast,...
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Take My Hand is a welcome, practical guide for the emotional journey of caregiving.
The caregiver's twisting and emotional journey is often bittersweet, combining feelings of exhaustion, reflection, love, frustration, delight, denial, connection, and loneliness. Just as they have taken on hand-holding for a loved one who needs multi-faceted support, many caregivers understandably feel overwhelmed and find themselves wishing for someone to guide them....
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In a heartbeat, you or someone you love may be rapidly transformed from a life of health and wellness to one of critical illness. Over the past four decades, Ronald Kotler, M.D., has treated patients who have become critically ill. He has seen patients recover and go on to lead long, healthy lives. He has also treated patients who did not survive. In this medical memoir, Dr. Kotler takes readers to the frontlines of caring for critically ill patients...
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This "stay positive in difficult times" story is about a man with ALS (also known as Lou Gehrig's disease) and his wife who writes about their inspiring journey in her blog called ALS With Courage.
In Hold On, Let Go, Nadine Sands expands on her blog, which takes her readers from pre-diagnosis to Michael's complete paralysis, and reflects throughout on her husband's strength and determination; on their hope and faith in God; and the sorrow and joy...
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'In Medicine as a Human Science, Dr Norelle Lickiss explores the telos of medicine and the vocation of its practitioners. It is a small collection of essays, written in elegantly simple prose, but profound in its impact. Dr Lickiss's ecological conception of medical practice presents the doctor-patient relationship, based on mutual respect, as the central dynamic of the art and science of healing. Based on her long experience as a consultant in oncology...
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Anna didn't want to die. She wanted to live to see her grand-daughters' weddings. But, it was not to be.
It is always tragic to lose a loved one, but it is sheer torture to watch one's partner deteriorate day by day, losing faculties one by one, the use of arms, legs and hands, and eventually the ability to speak. It is awful when a brain ceases to function, memory goes and friends are no longer recognised. It is even worse when someone is aware...
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Explores how religious understandings of death are experienced in hospice care.
In the 1960s, English physician and committed Christian Cicely Saunders introduced a new way of treating the terminally ill that she called "hospice care." Emphasizing a holistic and compassionate approach, her model led to the rapid growth of a worldwide hospice movement. Aspects of the early hospice model that stressed attention to the religious dimensions of death...
15) Jada
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Jada Jai Tyus-Thornton can literally be described as a true warrior. In this biographical telling of her life, her parents provide informative and comical details as told from the point of view of Jada herself. Jada breathed life into all that she touched, and now her parents honor her as they gift us with the precious details.
This book is not only meant to grant access, but to inspire, educate, and motivate you to your next level as well. Is...
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"This country is fairly crowded with doctors, families, and patients-all possessed of good intentions-failing to achieve the simple goal of allowing people to die with dignity and grace."
In the 1970s, most Americans died swiftly and brutally: of heart attacks, strokes, cancer, or in accidents. But in the past three decades, medical advances have extended our lives and changed the way we die. In Last Rights, Stephen Kiernan reveals the disconnect...
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Un guide essentiel pour comprendre les soins palliatifs et les besoins des patients en fin de vie
Si ce livre est avant tout destiné aux médecins généralistes et aux soignants du domicile, il pourra être utile à tous ceux qui s'intéressent aux soins palliatifs et cherchent à compléter leurs connaissances, à élargir leur réflexion, à poursuivre leur remise en question.
Ce manuel richement documenté, non pas seulement destiné aux professionnels...
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As a nurse or palliative caregiver, do you want to take better care of terminally ill patients, their loved ones, and yourself? Would you like to be empowered under difficult circumstances and feel more comfortable about what to say when providing palliative care?
Based on thirty years of experience as an oncology nurse, Meina Dubetz shares real-life stories that will enable you as a nurse or palliative caregiver to fully support your patients facing...
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This book tells the story of John, who has an intellectual disability. John is dying. The pictures follow him in his illness and his final days. They are designed to help the reader make sense of what is happening to them or someone they know who is ill. The pictures help them to ask questions or share their concerns.
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Conversations About Death is the result Sally Cant's twenty years in the death and dying industry. It contains a wealth of information that will make you feel more relaxed, open and comforted by talking about death and dying. Conversations About Death is a much needed tool: to assist in those conversations about what things a person might consider for themselves and their families regarding their death; to understand what's happening in the field...
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